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Are There Any Stories of Peyronie’s with Positive Outcome?

Peyronie's Question

I just wanted to say thank you for creating this website. It has been a great resource and source of support to me.

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I was just diagnosed by my urologist with Peyronie's this week. He told me to 'wait and see' what happens and offered no treatment options whatsoever. If I had not found your website, I may have just accepted that as the only option. There is so much bad or very incomplete information about Peyronie's out there. Thank you for creating this website, and offering such an excellent and thorough and supportive resource for other men with the condition.

I guess at this moment I am just scared. I don't know what this is going to to do to my body, and if my sex life will ever be the same again. I am going to tell my girlfriend I have it this afternoon. I think she will be understanding though I expect her to be upset too. 

Do you know of any stories of Peryonie's with positive outcomes? I seem to find so many stories of people saying the bend gets worse and worse, they can't get an erection or have sex at all. It would be so helpful for me to just read some stories of people who went through this and came out OK and still had a fairly normal sex life.


My Peyronie's Answer

Thank you very much for your kind words. I really appreciate it and it is very motivating for me to receive feedback like this.

Being scared is perfectly normal. Getting Peyronie’s disease is a daunting experience. Peyronie’s is a serious condition and can have serious consequences. However, there are things that can be done and many men have managed to improve their condition and continue to live healthy satisfying sex life.

There are many Peyronie's success stories, including my story. Number of men have shared their stories on my website. Some are positive, others are not. If you read through them you will see a “thread”. Those that are more positive tend to be men that did seek professional help early on and did get support from others (partner, friend, family). There are also some forums for men with Peyronie’s that can be helpful (or not… depending on how you use them!).

It can be helpful to read what others are going through, but it can also be difficult, even depressing. Some men have had bad result and are very negative and they can easily drag you down if you let them. When reading about others experience read about it as such. It’s others experience, not yours. Take the best from it, the things that can help you in your dealing with Peyronie’s. Leave the rest behind. This is very important. Don’t let others sad stories get you down. Concentrate on your story, how you can get the best outcome for your story.

You don’t say anything about your condition, but the good news is that you are in the acute phase, which means you both have more treatment options available to you and you can also expect better results. On the downside, the condition can continue to progress until you reach the stable phase (usually within 12-18 months). No worries, you can still enjoy sex. You just need to be aware of this and avoid putting any extra strain on your penis during this period.

I’m glad to hear that you have a girlfriend. Having a supportive partner is invaluable when dealing with Peyronie’s. This article is for your girlfriend and if she has any questions, she can ask me or my wife anytime.

What I recommend you do is to do your own research. Understand what Peyronie’s is and what treatment options are available and which one you are interested in exploring further with your doctor. Look for a good Peyronie’s specialist (not all Urologist have experience of Peyronie’s so ask around) and prepare well for your first appointment.
Stay focused, stay positive and involve your girlfriend in your research and tell her how you feel. Also ask her how she feels. Work together on this and your relationship will become stronger.

I wish you all the best with your treatment.

Kind regards,

Hello, I'm Birgir

This website is based on my experience of Peyronie's disease