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My PD Journey and Xiaflex Treatment
I was diagnosed with Peyronie's disease in June 2013. It began with a small nodule in the size of a grain of rice on dorsal near the base. Within 6 months, the plaque developed into a long, hard cord that covers the entire dorsal (between base and glans). The cord (or plaque) is about 5 mm wide; 3 mm thick. The curvature was 42 degrees upward in 2013. Gradually the curvature reduced to 39 degree.
I had 5 Verapamil injections in September 2013. In my opinion, Verapamil turned the small nodule into the long hard cord and curvature worsened along with shortening problem (lost 1") I don't blame my uro for Verapamil shots. He was trying to help.
Then in 2015, I completed 4 cycles of Xiaflex.
Summary of Xiaflex Treatment
Pre-xiaflex was approx. 39 degrees
1st xiaflex cycle: 3/2, 3/5
measured 4/2 - 39 degrees
measured 4/15 - 35 degrees
2nd xiaflex cycle: 4/30, 5/1
measured 5/18 - 32 degrees
3rd xiaflex cycle: 6/15, 6/18
measured 7/12 - 30 degrees
4th xiaflex cycle: 9/15, 9/18
measured 12/1 - 30 degrees (no change)
My uro thinks there isn't anything he can do to help me. I just have to live with the PD condition. Xiaflex reduced curvature by 9 degrees with the cost of 28K USD.
I am still using the traction device, hoping I can gain some length back and reduce curvature, but I feel my plaque is a very stubborn one.
Any advice, remarks, suggestions, news on PD treatment will be appreciated.
Thank you in advance!
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