My PD Journey and Xiaflex Treatment
I was diagnosed with Peyronie's disease in June 2013. It began with a small nodule in the size of a grain of rice on dorsal near the base. Within 6 months, the plaque developed into a long, hard cord that covers the entire dorsal (between base and glans). The cord (or plaque) is about 5 mm wide; 3 mm thick. The curvature was 42 degrees upward in 2013. Gradually the curvature reduced to 39 degree.
I had 5 Verapamil injections in September 2013. In my opinion, Verapamil turned the small nodule into the long hard cord and curvature worsened along with shortening problem (lost 1") I don't blame my uro for Verapamil shots. He was trying to help.
Then in 2015, I completed 4 cycles of Xiaflex.
Summary of Xiaflex Treatment
Pre-xiaflex was approx. 39 degrees
1st xiaflex cycle: 3/2, 3/5
measured 4/2 - 39 degrees
measured 4/15 - 35 degrees
2nd xiaflex cycle: 4/30, 5/1
measured 5/18 - 32 degrees
3rd xiaflex cycle: 6/15, 6/18
measured 7/12 - 30 degrees
4th xiaflex cycle: 9/15, 9/18
measured 12/1 - 30 degrees (no change)
My uro thinks there isn't anything he can do to help me. I just have to live with the PD condition. Xiaflex reduced curvature by 9 degrees with the cost of 28K USD.
I am still using the traction device, hoping I can gain some length back and reduce curvature, but I feel my plaque is a very stubborn one.
Any advice, remarks, suggestions, news on PD treatment will be appreciated.
Thank you in advance!
Join in and share your experience of Peyronie's. It's easy to do. Simply click here and Share Your Peyronie's Experience with others.