What is Peyronie's disease? Share your Peyronie's disease experience Andropeyronie penis extender Visit my Peyronie's shop

Penis Problems - A Life Changing Diagnosis


1 Comment

We need to think differently about male health and well-being. Andrology isn’t a joke; it should be taken just as seriously as gynaecology. After all, a penis is a beautiful, sensitive and extra-ordinarily wonderful part of human anatomy and essential to every man’s male identity.

Living as male we’re constantly conscious of our sex: how it feels, how it reacts, how it moves, how it looks, the profile of our jeans, etc. I love it and the sperm-driven nature of our sex. To be male, infused with testosterone, is to live a life that’s sexually charged. A penis is integral to our sense of masculinity. We men cannot but experience the world with our penis and I’m just like any other guy learning to live with his penis.

Man with penis problems

So to find I have a major sexual defect is life-changing. I’m 63, live on the South Coast of England and was recently diagnosed with Peyronie’s. Discovering that something had gone radically wrong with my penis and to see its deformity when erect has been a mortifying and devastating experience.

I’ve always loved having a penis so, since puberty, I’ve made full use of frequent erections and very much enjoyed everything that being male entails. I masturbate a lot and have sex with both male and female friends, even though I’m gay and am in a long-term relationship.

My male friends are married guys who simply enjoy male company for what it is (as long as their mates don’t find out!). My female friends are equally excited about having full-on penetrative penis/vagina sex to mutual orgasm and impregnating ejaculation with their gay male friend. So, naturally my penis is an essential character in my friendships and in how I feel about myself as a man.

I met a mate for a naked day together. As I was giving him a lingam massage I looked down at my own erection and was horrified to see a big depression towards the base of my shaft on the right side and what looked to be a narrowing darker band around the base of my penis. The radical change in my penis seemed to have happened almost overnight. I was terrified he’d notice my new deformity.

Knowing how the penis works, I thought I had a serious vascular problem and immediately saw my GP. He had no idea what the condition was when I described it (he didn’t examine me but instead asked me to take some pictures of my erection) and then referred me to a urology clinic.

A surgeon confirmed Peyronie’s disease on examination and referred me for lithotripsy treatment. I undertook this over a period of three months but found that it had no beneficial effect. In fact the condition deteriorated, my penis-bend to the right became more pronounced, the band of narrowing tightened, and another lump of plaque developed on the left of my penis shaft, half-way up. Even worse, I also lost about an inch and a half in my fully erect length. I used to have a 7.5 inch erection.

One good thing is that I’ve never noticed any pain in my penis when I’ve had erection, or when I've entered and been inside a woman, or when I’ve masturbated on my own or with my male mates.

Peyronie’s has had a devastating effect. My erections are no longer stable and I feel acutely embarrassed about how I look when sexually aroused. My penis is much shorter, is kinked to the right and has a twist when erect. Consequently, it’s like sex has dropped off a cliff and I’m even almost afraid to see my erect penis when I need to masturbate and feel the deformities in my shaft.

Viking ancestry and blood group A

The local consultant, who said I must have some Viking blood in me, has now referred me onto one of Europe’s leading specialists and I’m currently following his advice to use vacuum therapy to stretch the tissues in my penis. He’s also prescribed sildenafil to help maintain erections and I now try to have frequent erections to engorge and improve the blood flow in my penis. If this helps break-down the plaque then that’s a genuine benefit. If at all possible, I’m anxious to avoid surgery. I just would love to regain the joy of my manhood.

Is there something about Peyronie’s that is linked to Viking ancestry? Is there a defective gene carried through the ‘y’ chromosome perhaps? My blood group is also A+ and I read somewhere that this is often a precursor to developing Peyronie’s.

It’s just so difficult to express how life-changing this male condition can be. We all want something better for our penis – I just want it to be as it was, with its natural imperfections, so it can continue to bring joy and pleasure to my friends and to me.



Join in and share your experience of Peyronie's. It's easy to do. Simply click here and Share Your Peyronie's Experience with others.




Comments On This Article

Birgir April 30th, 2015

Dear Kevin

Thank you very much for sharing your penis problems with My Peyronie's. You really know how to put it into words. I just couldn't agree more with your opening statement:

"We need to think differently about male health and well-being. Andrology isn’t a joke; it should be taken just as seriously as gynecology. After all, a penis is a beautiful, sensitive and extra-ordinarily wonderful part of human anatomy and essential to every man’s male identity"

This is exactly why you would expect men with Peyronie's to receive understanding and empathy from their doctors… as most of them are male and should understand how devastating and scary Peyronie's must be.

Unfortunately this is not always the case. So many men experience the total opposite from their doctors but fortunately this is changing (slowly) as more doctors know more about Peyronie's.

It is good to hear that you are now seeing one of Europe’s leading specialists. Vacuum therapy is great to improve erection quality but erection quality is very important for men with PD as having intercourse without firm enough penis can aggravate the disease.

Have you asked your doctor about adding traction device to your treatment plan? In my opinion, traction is more effective than vacuum therapy for trying to correct penile curvature.

Traction will also help with getting back lost length, that just how traction works. If interested in finding out more, then my answer in this article contains links to my articles about this subject.

According to your photos, your curvature is relative mild / moderate. As long as it does not get worse, you could maybe "learn to live with it". The curvature is though in bad place, i.e. close to the shaft, making stability an issue. So be very careful when having sexual intercourse, avoid putting any awkward pressure or strain on your penis and use your vacuum pump diligently.

Learning to live with it can be easier said and done, and it is important not to ignore what I like to call the emotional part of Peyronie's disease. I hope you have someone to confide in, it can really help.

Viking ancestry and blood group A

Very interesting point that you raise about Viking ancestry and blood group A (I'm both!). I have not heard about neither before but will definitely investigate this further at some point.

I wish you all the best with your treatment and hope you keep me (us) updated about your progress. And if there is anything I may be able to assist you with, please be in touch.

Kind regards,

Birgir


Leave Your Comment On This Story

Please note that all fields followed by an asterisk (*) must be filled in.

Note that only the Display name will be shown with your comment.



Please enter the word that you see below.

Captcha submission challenge   


All comments are moderated and must comply with my Commenting Rules. I will send you an email notification when your comment has been published, so please ensure your email address is valid and correct.


Shopping cart trolley Cart: item(s) | View Cart

Hello, I'm Birgir

This website is based on my experience of Peyronie's disease