Nightmare On Turn-Up Street

Dear Donit Rong

Thank you very much for sharing your Peyronie's story. Unfortunately, those reading your story on this website are likely to be in similar position as you. However, reading about others experience is very helpful. Not only can men pick up some tips and ideas, it also helps them to realize that they are not alone dealing with the dreadful disease. It can give them much needed hope and inspiration.

It is great that you have found good doctor that is working with you and like you say, is in it for the "long" haul. Like you, it always surprises me how many Urologists (mostly male) show little empathy to this problem. You would have expected them to understand how difficult this is for men's feelings and self-esteem.

It's great that you have started your treatment. You don't say which injections you are having, I'm guessing Verapamil, or even Xiaflex (as you talk about "molding"). I hope you keep us posted about your progress.

Yes, it is very disheartening that there are no guarantees that any Peyronie's treatment works. But look at it this way, it is very unlikely to work if you do nothing (it is assumed only 5 - 15% of Peyronie's cases resolve without any treatment). The sooner men start treatment the better results they are likely to get.

You are in good hands now, that's the main thing. And it is good to hear you have good insurance in place. Very important.

Regarding the loss of penile length. Traction therapy will help in that respect. There is no question that traction does lengthen the penis if used for prolonged period of time. That's just how traction works (think of long neck Padaung women in Burma). It however does require commitment, you need to wear the device for up to 8 hours per day for few months for best results.

You can realistically expect between 0.5 – 1 cm in penile length per month of use. So to increase your penile length by 1 - 2 inches (2.5 – 5 cm) you are likely to have to use the penis traction device for 6 - 10 hours daily for 3 - 6 months.

You may want to discuss with your doctor about adding traction therapy to your treatment plan. That would be in line with Dr. Levine (one of the best-known Peyronie's specialists) Recommended Non-Surgical Treatment Plan.

I wish you all the best with your treatment and I hope you keep us posted about your progress. The good thing about nightmares is that they always end. Let's hope that will be the case in this case!

And if there is anything I may be able to assist you with, just be in touch.

Kind regards,

Birgir

I just went to see a Urologist earlier this week. He wants a picture of me fully erect so he can see exactly how bad it is. He gave me a xiaflex info packet to read through and a follow up visit in a couple of weeks.

I've always been proud of being larger then average. Not anymore. My wife has noticed too of course. My curve is far forward near the tip. The tension when fully erect is a little painful but not bad bad. Doctor said this condition is usually caused by some type of trauma. Don't recall anything like that.
My wife is not very sexual so there's no chance she'd go crazy on it, lol.
This whole thing really creeps me out.

I appreciate the input of others though I have not found super positive info and answers.