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My Peyronie's Story So Far


8 Comments

I'm a 53 year old man living in London, UK. I'm in good health and reasonably fit. I have been divorced for about 15 years and have had a number of relationships since then. I enjoy sex in the context of a loving relationship. Prior to getting Peyronie's my penis was very straight at about 6.5 inches long and I was pleased with how it looked and had no problems in the bedroom.

Personal Peyronies story

In January 2012 I had a bit too much to drink and went to bed with a woman who was just a friend. I didn't particularly fancy her but we had sex. Her vagina was very small and my erection not very hard. I remember having trouble getting into her. I thought nothing of this but the following day had a bad pain in my penis when I woke up. I still didn't take much notice but a week or so later I woke up with an erection and a bent penis – about 25 degrees upwards.

I panicked and felt my world was coming to an end. I saw my GP and she said not to worry and it would go away. I then spent a day trawling the internet for help which made me worry more especially as many of the websites were just out to sell something and gave conflicting information. I wrote to my GP saying I wanted a second opinion and she referred me to a sexual health clinic. The doctor there said there was little they could do at this stage but to come back in a year's time when surgery might then be an option.

I then decided to do everything I could to help resolve my condition. I'm not a wealthy man – money is tight so expensive options were out of the questions unless they offered guaranteed success and nothing short of surgery offered that. I straight away started to take 800ui of vitamin E a day with meals as vitamin E is fat soluble. I bought the high quality natural alpha D form as better than artificially made tablets. I also tried Neprinol tablets but when I ran out cost prohibited me buying more.

During this time I met another woman and she was very understanding about the Peyronie's. However much she encouraged me I felt inadequate sexually and often couldn't get hard enough for penetrative sex. I would be hard when I entered her but immediately my mind would start saying I was going to come out of her and my erection would soften. She would masturbate me which I really enjoyed but I also felt we were missing the intimacy of proper sex. I would get quite distressed in the bedroom and felt I was not good enough for her sexually.

My Peyronie's had by now got worse. The curvature was now about 45 degrees upwards and about 10 degrees to the right side. I couldn't feel any plaque but there was a narrowing of the shaft on the right top side. I would still get night and morning waking erections which were very hard but with very pronounced curvature. My penis also was shorter – now about 5.5 inches on a good day. I became obsessed about the length – thought back to how I was previously.

I've always masturbated a lot and have been careful since the Peyronie's to be less vigorous. Sometimes I masturbate 2 or 3 times a day which perhaps is not good for the Peyronie's.

My mental attitude to the Peyronie's developed into it being a dark secret where I felt I was a man outwardly and a reasonably attractive one but a fraud - that any woman I met would reject me and be disappointed in me once she found out my dark secret. I looked at other men thinking they were superior to me – a better catch.

In about October 2012 I bought a vacuum erection device and used it for about 15 minutes most days. I marked the limit of my erection on the tube with a permanent marker as this was a good accurate way of measuring my progress. I also bought a cheap gel filled hot water bottle – the type that goes in the microwave to warm up. I then put the bottle against my penis and kept it there for about 20 minutes each day. I also at bedtime do Kegel exercises to improve the pelvic floor muscles and general blood circulation in the pelvic area.

It's now February 2013. I'm single again but looking for a woman but with great fear about the sexual side of things. I would say my penis curvature has slightly improved – say about 40 degrees with a slight bend to one side still. I have no pain and haven't done since about 1 month after the injury that caused the Peyronie's.

I have been a bit lax with the VED and heat treatment and will resume that now. It may be too late to change the Peyronie's but worth a try.

I would say that with 40 degrees of curvature that intercourse is possible but only with a very hard erection and the penis is very prone to coming out of the vagina and difficult to get back in. I'm trying to visually like my penis again as I was almost frightened to look – just reminded me of where I'm at and sad for what I once was.

I am though coming to terms with the Peyronie's and in a few months' time will be seeing the urology consultant again. I would consider surgery but am concerned about the risks and possible reduction in length. I think improving my confidence sexually would help more as maintaining an erection is more important and curvature as long as intercourse is still possible.

I'm feeling less concerned about my Peyronie's now and know that there are many ways to enjoy great sex. I'm sure once I meet a loving woman again she will be kind and understanding as most women are with someone they love. In many ways it will be good to take things slowly and not be intimate too early into the relationship.

I also still believe my Peyronie's will improve and will continue using the VED, heat application and daily Kegel exercises - non of these will do harm and only take up a small part of my day.

Good luck to you all and keep positive!

Steve

 

Update 18th February 2014

Update of my Peyronie's story..., I have had Peyronie's for 2 years now and the condition has stabilised and if anything there is some slight improvement with a reduction in curvature.

For the first year the Peyronie's preoccupied my thoughts and I had a great fear about meeting a new woman and having a physical relationship.

Two years on I haven't met the special woman but my fears have subsided as I know that when I meet someone special she will understand and love the complete me - not just my penis.

Having Peyronie's will also make me less inclined to rush into a physical relationship - I will make sure that love is there first and that I'm sure will be a good thing.

Remember as men we probably over estimate the absolute need for sexual intercourse when there are actually many other options that you and the woman will equally enjoy. When we first meet a woman the fears rush through our head - but when the time comes to be physical and things are right there will be a tenderness and understanding that will help things along. The woman may also have fears about her own body that we can be understanding about and so in a way things balance out.

Steve




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Comments On This Article

  1. Birgir February 11th, 2013

    Dear Steve

    Thank you so much for sharing your story with My Peyronie's readers. Your attitude is very encouraging and without doubt helpful to fellow sufferers.

    Your journey in coming to terms with the Peyronie's disease is very informative and I totally agree with your conclusions. Working on the sexual confidence is so important for men with Peyronie's disease.

    Realizing there are many ways to enjoy great sex and that the right women will stand by you are important steps in that direction. As is visually and mentally liking your penis again. I'm convinced you are on the right track mentally and I'm actually impressed that you have managed to get there this fast.

    I'm very pleased to hear that your condition has slightly improved and strongly encourage you to continue your regimen. You could still be in the acute phase so it is important to use the time to try to improve the condition further. Surgery is always the last resort and hopefully there is still room for improvements without it.

    VED sounds good in your case as it helps with the erection quality as well. I don't know if wearing traction device is practical option for you but it may give better results with the curvature (more traction) as well as help with the penile length and girth (which is the original purpose of traction therapy).

    But like you say, as long as intercourse is still possible, then it is very much about the right attitude and in my opinion you got it. Now you just need to find the right women to share it with you :-)

    I wish you all the best in your Peyronie's battle and your search for the right women. Do keep up your regimen, it can only help.

    It would be great to hear about your progress and again thank you very much for sharing your story. Your positive attitude is very encouraging.

    All the best,

    Birgir

    • Steve February 11th, 2013

      Dear Birgir,

      Thank you so much for your kind encouraging reply. I'm pleased to be able to share my experience on your excellent website.

      I will write a follow up story probably by the summer.

      Kind regards

      Steve

    Jim April 21st, 2013

    Thank you for this website. I too am dealing with Peyronie's for nearly five years and searching for answers. I have tried several products with no results as of yet. It was an encouragement to read Steve's article, someone willing to share some what of their experience, again Thanks

    • Birgir April 22nd, 2013

      Thank you Jim for your kind words about My Peyronie's disease, feedback like this is very motivating for me.

      I'm sorry to hear you haven't seen any results yet in your Peyronie's battle but I'm pleased to hear you find Steve story helpful.

      I fully agree with you that Steve attitude is very encouraging. It is not only about fighting the physical side of Peyronie's, it is also about fighting the psychological side. He is not letting Peyronie's get him down and working on his sexual confidence. He is exploring his options to enjoy great sex life with Peyronie's... at the same time as trying to improve his condition. I think we can all learn from his attitude.

      I don't know what you have tried so far or your current situation but I wish you best of luck Jim. And again, thank you for your comment.

      Best regards,

      Birgir

David February 7th, 2014

Hello Steve and Birgir,

My name is David and I'm 36 (almost 37) and live in Canada.

Over the past year and a half I've noticed a dent in the shaft of my penis almost at the bottom right side looking down at it. I noticed this the morning after a long drive with my partner where I was erect on and off and it bent to the side for about 3/4 hrs..

Reading all the stories and information I'm convinced that it is in fact peyronie's.

I have noticed an almost 2 inch decrease in size. The curve bends to the right but doesn't seem that severe. The dent is about the width and depth of a middle finger. Or at least my middle finger. When I feel that area it feels like a stretched band on the inside. When not erect it feels like a bump.

This has consumed my thinking and I'm finding it more and more of a distraction in my daily life. I do believe I need to go see someone but am extremely embarrassed. I used to feel very confident with my size and overall appearance but now I'm discouraged. I just had a physical from my family doctor and couldn't find the courage to tell her about it. I'm afraid I have to gone thru her to get a referral to see a urologist. I'm stressed out of it is going to be a woman doctor (which my family one is).

The traction devise... Is that something the doctor can get for you or would I have to buy it some where else?

If you guys or anyone can give me advise, I would very much appreciate it.

  • Birgir February 7th, 2014

    Dear David,

    Thank you for your comment. I'm really sorry to hear about your condition. The way you describe it, it sounds like Peyronie's disease, but the only way to be 100% sure is to see a doctor. And the sooner you do it the better as time is of importance where Peyronie's is concerned.

    We all know how difficult it is to see a doctor and have our private parts examined. But we just have to bite the bullet and do it. And so far we have all survived the experience (and most of us found it easier afterwards than we had expected). I thought about women, most of them see a gynecologist number of times during their adult life. If they can do it, so must we.

    Remember, the doctor is just doing his or her job. They have seen it all before (and usually something much worse). If you find it difficult to have a female doctor examine you, then just tell her and ask if she can arrange for a male doctor to see you or refer you directly to a male Urologist without examining you first. She will almost certainly understand and will not take it personally.

    But you must see a doctor and a.s.a.p. You may still be in the acute phase, making you a good candidate for the less invasive treatments. The better prepared you are for meeting your doctor the better. This article may help you to prepare you for your doctor's appointment.

    Questions To Ask Your Doctor

    While this article compares the most common treatment options today. It may help you to identify the options available to you.

    Peyronie's Treatments Comparison

    The way you describe your condition, traction therapy might be an option for you. I would definitely discuss that option with your doctor. I don't know if you can get the traction device through the health system in Canada (I'm not aware of any country in the world that offers them through their health service), but if not, then you can buy them easily on-line (e.g. from this website). Traction definitely helps you to gain back some of the lost length but it does take commitment. Traction has been shown to be effective treatment option as well (I recommend you read my personal reviews of the best devices available on the market).

    I hope this helps but feel free to contact me anytime if anything I can help with. You can use the Contact Form to contact me personally.

    Please go and see a doctor now (sorry I know I sound like a broken record, but it is important). You will feel better once you have done so. Please keep in touch and keep us posted about your progress.

    Best regards,

    Birgir

  • Steve February 18th, 2014

    Dear David,

    I agree totally with what Birgir has said. I know from my own experience how the shock of discovering Peyronie's is all consuming but as time progresses I hope you will see things in a more objective way.

    I hope also that you are able to arrest the progression of your Peyronie's and have some reversal of the symptoms.

Birgir February 18th, 2014

Dear Steve

Nice to hear from you again and really good to hear you have seen some improvements in your condition.

And I couldn't agree more strongly with your conclusions. When you meet the right women, she will love you... just the way you are. With the right mindset, Peyronie's may even make us better lovers!

All the best Steve and thank you very much for your contribution to My Peyronie's.

Best regards,

Birgir

Jetski August 5th, 2016

Thanks for sharing your experience and insight

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Hello, I'm Birgir

This website is based on my experience of Peyronie's disease